Living with children with autistic spectrum condition: parental stress and the impact upon family functioning.
Introduction. Parenting a child with Autistic Spectrum Condition (ASC) is both practically and emotionally challenging. The condition brings difficulties in communication and social interaction, as well as abnormal behaviour patterns, all of which have an impact upon parents. Method. As part of a larger study, one hundred mothers of children with ASC were asked to complete several scales including the Family Adaptation and Cohesion Evaluation Scale (FACES IV), and The Parenting Stress Index-Short form (PSI-SF). Results. The Parenting Stress Index scores showed that the mothers of the primary aged children felt very high levels of parental stress, and distress, while the mothers of secondary age children reported lesser levels. The FACES IV scores indicated that the sense of flexibility was higher in the mothers of adolescents, and that the families of girls were less cohesive than that of boys. Discussion. The highest level of parental stress was reported by the mothers of younger children, with the parenting of teenage girls being the most stressful. Conclusion. A family pattern which tends to seek smaller changes could reduce the sense of family distress that parents of children with ASC experience. As the children move into adolescence the mothers tend to feel less stressed, but less so for the mothers of teenage girls.
Kanner, L., Autistic disturbances of affective contact. . Nervous Child, 1943. 2: p. 217 - 250.
Kanner, L. and L. Eisenberg, Early infantile autism, 1943-1955. Psychiatric Research Reports, 1957(7): p. 55-65.
Bettelheim, B., The Empty Fortress: Infantile Autism and the Birth of the Self. 1967, New York: Free Press.
Le Couteur, A., et al., Diagnosing autism spectrum disorders in preschool children using two standardised assessment instruments: The ADI-R and the ADOS. . Journal of Autism and Developmental Disorders, 2007. 38: p. 362 - 372.
Chandler, S., et al., Emotional and behavioural problems in young children with autism spectrum disorder. Developmental Medicine and Child Neurology, 2015. June 16.
Woodgate, R.L., C. Ateah, and L. Secco, Living in a world of our own: The experience of parents who have a child with autism. . Qualitative Health Research, 2008. 18: p. 1075 - 1083.
Karst, J.S. and A.V. Van Hecke, Parent and family impact of autism spectrum disorders: a review and proposed model for intervention evaluation. Clinical Child and Family Psychology Review 2012. 15: p. 247 - 277.
Davis, N.O. and A.S. Carter, Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism & Developmental Disorders, 2008. 38: p. 1278 - 1291.
Montes, G. and J.S. Halterman, Psychological functioning and coping among mothers of children with autism: A population-based study. Pediatrics, 2007. 119: p. e1040–e1046.
Valicenti-McDermott, M., et al., Parental Stress in Families of Children With Autism and Other Developmental Disabilities. Journal of Child Neurology, 2015.
Hastings, R.P. and T. Brown, Behavior problems of children with autism, parental self-efficacy, and mental health. . American Journal of Mental Retardation, 2002. 107: p. 222 - 232.
Herring, S., et al., Behaviour and emotional problems in toddlers with pervasive developmental disorders and developmental delay: associations with parental mental health and family functioning. Journal of Intellectual and Disability Research, 2006. 50: p. 874 - 882.
Hoogsteen, L. and R.L. Woodgate, Centering Autism Within the Family: A Qualitative Approach to Autism and the Family. . Journal of Pediatric Nursing, 2013. 28: p. 135 - 140.
MacDonald, H. and P. Callery, Parenting children requiring complex care: A journey through time. . Child: Care, Health and Development, 2008. 34: p. 207 - 213.
Reichman, N.E., H. Corman, and K. Noonan, Impact of child disability on the family. Maternal and Child Health Journal 2008. 12: p. 679 - 683.
Olson, D.H., Administration Manual; FACES IV Package2009, Minneapolis, Minnesota.: Life Innovations, Inc.
Olson, D.H. and D.M. Gorall, Circumplex model of marital and family systems., in Normal Family Processes., F. Walsh, Editor 2003, Guilford: New York. p. 514 - 547.
Olson, D.H., FACES IV and the Circumplex Model: Validation Study. . Journal of Marital and Family Therapy, 2011. 3: p. 64 - 80.
Barnes, H.L. and D.H. Olson, Parent-adolescent communication and the Circumplex Model. Special Issue: Family development. . Child Development, 1985. 56: p. 438 - 447.
Olson, D.H. and H.L. Barnes, Family Communication. FACES IV Package.2009, Minneapolis, MN.: Life Innovations, inc.
Olson, D.H. and M. Wilson, Family Satisfaction., in Families: What Makes Them Work. , D.H.a.c. Olson, Editor 1989, Sage Publishing: Newbury Park, CA.
Abidin, R.R., Parenting Stress Index Short Form: Test Manual. 1990, Charlottesville, VA.: Pediatric Psychology Press.
Allbaugh, L.J., M.O. Wright, and L.A. Seltmann, An Exploratory Study of Domains of Parenting Concern among Mothers who Are Childhood Sexual Abuse Survivors. . Journal of Child Sexual Abuse, 2014. 23: p. 885.
Cox, A., et al., Maternal stress associated with juvenile idiopathic arthritis. International Journal of Rheumatic Diseases, 2014. 17: p. 541 - 547.
Barlow, J., et al., Group-based parent training programmes for improving parental psychosocial health. . Cochrane Database of Systematic Reviews 2014. May 17;5:CD002020.
Zaidman-Zait, A., et al., Factor analysis of the Parenting Stress Index-Short Form with parents of young children with autism spectrum disorders. Autism Research, 2011. 4(5): p. 336-46.
Dardas, L.A. and M.M. Ahmad, Psychometric properties of the Parenting Stress Index with parents of children with autistic disorder. Journal of Intellectual Disability Research, 2014. 58(6): p. 560-71.
Koegel, R.L., et al., Consistent stress profiles in mothers of children with autism. J Autism Dev Disord, 1992. 22(2): p. 205-16.
Dabrowska, A. and E. Pisula, Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research, 2010. 54: p. 266 - 280.
Estes, A., et al., Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 2009. 13: p. 375 - 387.
Boyd, C.J., Mothers and daughters: a discussion theory and research. . Journal of Marriage and the Family, 1989. 51: p. 291 - 301.
Barber, J.G., F. Bolitho, and L. Bertrand, Parent-child synchrony and adolescent adjustment. . Child and Adolescent Social Work Journal 2001.
Lucyshyn, J.M., et al., Transforming Parent-Child Interaction in Family Routines: Longitudinal Analysis with Families of Children with Developmental Disabilities. J Child Fam Stud, 2015. 24(12): p. 3526-3541.
Di Nuovo, S. and G. Azzara, Families with autistic children. . Rivista di Studi Familiari, 2011. 2: p. 25 - 38.
Baker, J.K., M.M. Seltzer, and J.S. Greenberg, Longitudinal Effects of Adaptability on Behavior Problems and Maternal Depression in Families of Adolescents With Autism. . Journal of Family Psychology, 2011. 25: p. 601 - 609. .
Gardiner, E. and G. Iarocci, Family quality of life and ASD: the role of child adaptive functioning and behavior problems. Autism Research, 2015. 8(2): p. 199-213.
Gau, S.S.-F., et al., Parental adjustment, marital relationship, and family function in families of children with autism. . Research in Autism Spectrum Disorders, 2012. 6: p. 263 - 270.
Haskett, M.E., et al., Factor Structure and validity of the Parenting Stress Index – Short Form. Journal of Clinical Child and Adolescent Psychology, 2006. 35: p. 302 - 312.
Farmer, A. and N. Peterson, Psychometric Properties of the Parental Distress Subscale. . Child and Family Studies, 2012. 21: p. 747 - 753.
Silva, L.M. and M. Schalock, Autism Parenting Stress Index: initial psychometric evidence. Journal of Autism and Developmental Disorders, 2012. 42(4): p. 566-74.
Zaidman-Zait, A., et al., An item response theory analysis of the Parenting Stress Index-Short Form with parents of children with autism spectrum disorders. Journal of Child Psychology and Psychiatry, 2010. 51(11): p. 1269-77.
Phillips-Salimi, C.R., et al., Perceptions of communication, family adaptability and cohesion: a comparison of adolescents newly diagnosed with cancer and their parents. . International Journal of Adolescent Medicine and Health, 2014. 26: p. 19 - 26.
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